BronchandNTM360social welcomes new member BethNDavid who joins 3,844 current members of our community. Weโ€™re glad you're here!

ChristinaH

ChristinaHRegistration is now open to attend the 2024 NTM & Bronchiectasis Patient Conference! in-person or virtually! Learn from experts in pulmonology, infectious disease, respiratory therapy, lifestyle support, and more! In-person attendees can visit the exhibit hall and learn about new devices, clinical studies, and more. The conference will be held at the Fairmont Del Mar in San Diego, CA, and the special discounted hotel rate is available until April 23. For virtual and in-person attendees, the conference will be recorded and available for a limited time after the conference. You must register to have access to the recordings. Register for the conference here:
https://na.eventscloud.com/website/69272/. 
Registration deadlines are May 1st for in-person registration and May 15th for virtual registration. We look forward to reconnecting with old friends and making new ones. Hope to see you all there!

4 days ago

Kandy

KandyHappy Earth Day everyone!!

10 hours ago

BethNDavid

BethNDavid

Hello Everyone, we are trying to get Tobramycin for inhalation for my husband. The insurance telling us the copay is almost $500 per month (that is with the Teva brand discount). Is there a way to get this through Canada, we can possibly go to Canada if we have to

11 hours ago

marsrocket

marsrocket

17 hours ago

Ksmiles123

Ksmiles123

17 hours ago

laff4evr

laff4evrNational Humor Month - Day 22

I made a spelling error on a purchase order.

My fresh fruit store now sells Chiquita bandanas.


21 hours ago

laff4evr

laff4evrhttps://www.youtube.com/watch?v=Xsp4DqGpzA0

Some members may be housebound due to health reasons.
This is something to watch if you enjoy fireworks.
There are a number of events leading up to The Kentucky Derby.
One of them is called Thunder Over Louisville.
It's North America's largest firework display.
They are launched from barges and a bridge on the Ohio River.
The sound kicks in at the 18 second mark.
There's an interlude from 17:30 to 18:40 before the finale.

1 day ago

laff4evr

laff4evrNational Humor Month Day 21

1 day ago

Storyteller

Storyteller

I am appreciate all your words of encouragement and hope, Katie. Just feels like the more I do for my lungs , the more disappointed I am with the results. 

2 days ago

  • Ksmiles123Many of us have been in your shoes ๐Ÿ‘Ÿ! Please hold onto hope- positive energy assists our bodies to heal.
    Every little step we take , over time may contribute to healing. 
    For example, we do not see / feel the results of airway clearance immediately but it actually lessens the chance of getting recurring infections or present infections from getting worse. One day at a time. 1 day ago
Storyteller

Storyteller

Needing some support . Feeling really nervous about my lungs  and the recommended treatment with azithromycin.   I know many people have had to endure the big 3, surgeries , more than this.
But I donโ€™t do well on any antibiotics and was told couldnโ€™t take zofran for the nausea with it.
feeling so discouraged ..
















2 days ago

  • NewestOldestClick to View All Comments12 comment(s)
  • StorytellerHi CHtun,
    I couldnโ€™t produce mucus for the last two sputum samples. The airway clearance seems to be helping the sputum production. I just wish it would make my pfts better.
    I will have pfts again when I go to Ct. the azithromycin regimen has been discussed with me. One dr said it would help my lung function , the other said it might prevent progression.
    Iโ€™m not crazy about the EKGs , hearing tests, and another antibiotic for a long period of time which nauseates me. I do take probiotics.
    I keep hoping there will be a REAL breakthrough before I have to begin on a long antibiotic regimen and constant monitoring .
    Sending hope to everyone who is struggling so hard with their lungs.6 hours ago
  • StorytellerI have had numerous bouts with b.cepacia. Hard to tell when it will show up.6 hours ago
  • StorytellerI do the saline but have almost comstant scratchy throat.6 hours ago
Ksmiles123

Ksmiles123commented onCoping with NTM/Bronchiectasis โ€“ Your Chronic Illness

 Storyteller,More research is being conducted in this disease area over the past 8 years than had been previously done in decades.Airway clearance, infection control precautions, stress management, healthy eating, adequate sleep will assist you in the...

2 days ago

Storyteller

Storytellercommented onCoping with NTM/Bronchiectasis โ€“ Your Chronic Illness

 Thank you, Katie, for your bravery and honesty in describing your initial response to your initial diagnosis. I have several chronic illnesses, including smoldering multiple myeloma. I am also a breast cancer survivor. The disease that scares me the...

3 days ago

Storyteller

Storyteller

Have bronchiecstasis sufferers who are on azithromycin 250 mgs 3 times weekly since improvements in their pulmonary function ?
This has been suggested for me โ€ฆ.actually, 500 mgs but as all antibiotics nauseate me , I would prefer to start with 250 mgs. ?
Still waiting for brensocatib and other โ€œbreakthrough โ€œ drugs to finally breakthrough !

3 days ago

JohnT

JohnTanswered the question Does anyone have a top (or top 3) recommendation(s) for getting a second opinion or consult?

Hi Chrism, I am sorry to hear that you went a long time without a proper diagnosis, but it is very typical in today's world. We are working on ways to get that diagnosis faster. Stay tuned. If you will call us at 833-411-5864, I can review the best …
Ksmiles123 also answered the question Ksmiles123 also answered the question

3 days ago

Chrism

Chrismasked the question: Does anyone have a top (or top 3) recommendation(s) for getting a second opinion or consult?

I was diagnosed 11/22 with NTM. In 2019, my PCP missed a bronchiectasis diagnosis from a coronary calcium CT scan. I went 3-1/2 years untreated & without airway clearance practices, no sputum til 2022. I had a bilobectomy in 5/23 and in 9/23 started …

3 days ago

Ksmiles123

Ksmiles123

Having and maintaining a sense of humor throughout challenging times may lessen the stress with the everyday tasks that we may encounter.
April is National Humor Month.
Below is the timeline of National Humor Events: 
Present ImpactWorld Laughter Day celebrations are organized by Certified Laughter Leaders in a variety of cities throughout America.
1999Comedy TourThe World Laughter Tour launched on May 27, 1999 in Columbus, Ohio. It was created by founder Steve Wilson.
April 1976National Humor Month BeginningLarry Wilde starts the tradition of celebrating humor.
1975The beginning of SNLThe first season of Saturday Night Live aired on October 11, 1975.

3 days ago

Robbie

Robbie

How do I access an online community?

4 days ago

Ksmiles123

Ksmiles123Hello! Have you had Shingles? Many people who have issues with their immune system have experienced Shingles.
Have you received the Shingles Vaccination?The link below provides an overview on Shingles.
https://www.healthline.com/health/shingles

Shingles: Symptoms, Treatment, and Prevention

Shingles, sometimes called herpes zoster, is an infection caused by the varicella-zoster virus. Learn more here.

4 days ago

marsrocket

marsrocketHere is some springtime beauty for your Wednesday. 

5 days ago

Ksmiles123

Ksmiles123Hello! We continue to cover the topic of stress management throughout the month since our physical health is impacted by our emotional health.. Inadequate communication skills lead to stress. The article below differentiates between assertiveness and aggressiveness. https://www.counselingreviews.com/blog/assertive-vs-aggressive/

Assertive vs Aggressive: The Differences and Examples

Is your communication style not working for you? Learn if your style of communication may be more aggressive rather than assertive.

5 days ago

Ksmiles123

Ksmiles123

Are you planning on traveling on a plane โœˆ on the near future? Below is an article with tips from the European Lung Foundation : https://europeanlung.org/en/information-hub/living-with-a-lung-condition/air-travel-when-you-have-a-lung-condition/

6 days ago

Storyteller

Storyteller

I am scheduled for pfts on Friday and so nervous after the pfts in Jan. showed I had 50 percent lung functionโ€ฆ.down from 2019.
I am wondering if the anxiety I feel with these tests is skewing the results. I take .5 klonopin in the morning for PTSD and panic attacks .in Jan., I didnโ€™t take the klonopin but am wondering if I should take it before the tests . I did put in a call to the nurse.
The other option is to do the pfts when I see my pulmo, whom I know well, in Ct. in May.

1 week ago

Ksmiles123

Ksmiles123asked the question: Do you know the early signs of an exacerbation?

The link below reviews the red flags of a possible exacerbation: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Exacerbations

1 week ago

Ksmiles123

Ksmiles123Hello! Below are a list of comforting quotes to deal with stressful times: https://www.inspiringquotes.com/comforting-quotes-for-stressful-times/YaauMws67AAGDtPd?liu=679101a10d878ea8d173d494520017c0&utm_source=blog&utm_medium=email&utm_campaign=2113834531

15 Comforting Quotes for Stressful Times

These quotes serve as reminders that your worries are temporary, and your own resilience will outlast them. This too shall pass.

1 week ago

Ksmiles123

Ksmiles123asked the question: Are you planning on traveling soon?

The link below offers some suggestions for BNTM individuals who will be traveling over the upcoming months: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Travel

1 week ago

CHtun

CHtunHerbal tea
https://herbalteatherapy.com/blogs/news

News

Mullein Tea

1 week ago

Ksmiles123

Ksmiles123

Does the impact of April rain affect your daily energy levels?

1 week ago

Ksmiles123

Ksmiles123Hello! April is National Humor Month. Please read the article below about the physical and psychological benefits of laughter: https://nationaltoday.com/national-humor-month/

National Humor Month

We're currently in another golden age of comedy. Here's how to celebrate National Humor Month by making laughter a part of your life.

1 week ago

Ksmiles123

Ksmiles123

Hello! Below is an educational video on exacerbations: https://m.youtube.com/watch?v=bfqJK288zPA

1 week ago

Ksmiles123

Ksmiles123The link below reports the best and worst places to live with seasonal allergies: https://www.nationaljewish.org/conditions/health-infographics/20-best-worst-cities-for-seasonal-allergies?utm_medium=email&utm_source=engagingnetworks&utm_campaign=HealthInsights+April+2024&utm_content=Health+Insights+-+April+2024

20 Best & Worst Cities for Seasonal Allergies

Seasonal allergies are caused by tree and grass pollens. View the best & worst cities for seasonal allergies and ways to prevent and manage allergy issues.

1 week ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.


NTM Infographic 1
NTM Infographic 2
NTM Infographic 3
NTM Infographic 4